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Interview with Ross McGowan
"Mornings
on Two," KTVU-TV, San Francisco, February, 1999
An excerpt from Dateline:
"I, Claudia", an interview originally broadcast in
April, 1998, on NBC: Dateline
Reprint
This
Up Close and Personal interview
of Dr. Osborn was published on The
Cooper Institute website,
January 14, 2000.
Traumatic Brain Injury: The Invisible
Thief
Out of sight, out of mind. But even when
the signs of brain injury are apparent¾short-term
memory loss, inability to perform certain tasks,
behavioral problems¾its
victims (who are known as ‘survivors’) or their
families may not connect their problems to the injury.
“Survivors consider their
neurological symptoms unimportant or they blame other
factors for their difficulties,” says Dr. Claudia L.
Osborn, author of Over
My Head: A Doctor’s Own Story of Head Injury from the
Inside Looking Out.
“The
survivor ‘recovers’ and returns to work or school,
the family rejoices in the fact that their loved one
survived and¾beyond
scrapes or fractures received in the accident¾everyone
believes no real harm was done.“
Over time, the brain injury may
be forgotten and the patient and family unlikely to
attach further significance to the event.
Survivors may not tell their doctors later that
they once had a brain injury, not even when those TBI
symptoms produce problems for them.
“They do not make the
connection,” she says, “between that injury and
their worsened performance. People say, ‘I got knocked
out, but no damage was done. I’m fine.’ How would
they know? It is the brain that gives us our
information. If the brain is injured, it cannot be a
reliable reporter.
“Nor can close friends and
family always judge what is ‘fine’. It’s easy to
notice when the brain injury has paralyzed a limb, but
the injury often causes changes in behavior, memory,
attention, judgement, and organization. Families
commonly attribute these changes to a lack of
motivation, a stage of life (adolescence, menopause) or
to depression.”
The Need for Objective Evaluation
Dr. Osborn, who lectures
throughout the
US
and
Canada
on TBI rehabilitation says it takes a neuropsychological
exam to determine if the brain trauma has caused
significant injury and if that injury would benefit from
rehabilitation.
She believes such assessment is
critical. “Not addressing a traumatic brain injury is
a missed opportunity that will impact that person’s
future. It spells the difference between just getting by
and living a happy, productive life.”
She speaks from personal
experience.
She is a survivor of a TBI. Her
brain injury, sustained when her bicycle was struck
head-on by a carelessly driven automobile, was minimized
by others and particularly by herself. Determined to
return to her medical practice, she was oblivious to her
injury.
“Despite the changes in my
behavior, my loss of short-term memory, and my poor
language skills, I could still insist I was fit to
return to work. Even
those—doctors included--who thought I needed more time
to rest and recover assumed that I would be myself again
soon.”
It
was in trying to return to her medical practice that her
problems became manifest and she sought help. That
included an eighteen-month rehabilitation program at the
Brain Trauma Day Program of Rusk Institute of
Rehabilitation Medicine, a division of
New York
University
in
Manhattan
.
Would
she have eventually overcome her problems without
professional rehabilitation?
“Absolutely not,” she says.
The Overlooked Diagnosis
She offers another example, this
one from her role as a consultant to a case-manager.
“The patient is a 20-year-old who was injured at age
15 when she fell off her skateboard. She was comatose
for just a few hours and had no other injuries. That was
in May. In September, she seemed fine and returned to
high school.
However, this formerly
high-achiever began falling behind. Her teachers
complained she didn’t pay attention and she had
disciplinary problems, using poor judgment, impulsive
behavior, and fits of anger. She couldn’t get a handle
on the practical side of her life. She couldn’t
organize, prioritize or manage what is called
“executive function,” a problem associated with
frontal lobe damage.
“Her parents knew of the TBI
diagnosis,” Dr. Osborn says, “but no one had ever
given her a neuropsychological examination
to evaluate the significance of this teenager’s
deficits, or directed her to a formal program. Her
problems were attributed to ‘adolescence’ and she
drifted unhappily along. That she graduated at all and
stayed out of serious trouble is due to her high
intelligence and family environment.
“While trying for college
entrance, the fact of her TBI was resurrected. She was
evaluated and directed into a rehabilitation program and
is doing very well. She can be thankful that all she
lost was a few years, as opposed to a good future.”
The Missed Diagnosis
Can brain injury occur and not be
diagnosed?
“It is not uncommon,” says
Dr. Osborn.
“Patients don’t always know
what happened during an injury, especially if they are
alone when they strike their head. They may be unaware
that they lost consciousness or may not even recall
hitting their head. Yes, they had an accident, but they
appeared to be uninjured and so they never consult a
doctor.
“I had a patient in her
fifties, living alone, who tripped and fell down her
basement stairs. She told her daughter about it later
that day saying she had been only slightly dazed and
bruised her shoulder. I saw her three days later when
her neighbor brought her in for a routine appointment.
She was dragging her right foot. She denied this was a
problem and wanted me to concentrate on helping her lose
weight although she wasn’t heavy.
“I
did a neuro exam and ordered a CAT scan. She had a sub-dural
hematoma—a blood clot pushing on her brain—from her
fall, which required surgery. When she recovered from
the surgery, by the way, she no longer wanted a
weight-loss diet.”
Frequently, a brain injury is
simply overlooked or deemed irrelevant to the person’s
problems. Or attributed to other causes.
“Sometimes symptoms overlap,”
says Dr. Osborn, “or masquerade as other entities¾adolescent
malaise, post-partum depression, emotional breakdown,
substance abuse, work-related stress, or menopause.
“Athletes may assume they’ve
never had a brain injury although they have been knocked
unconsciousness on the football field.
“All primary care doctors
should have a high index of suspicion for TBI when a
patient has behavioral changes.”
It is a point she emphasizes in her lectures to
physicians.
“They should consider whether
the patient may have an unevaluated TBI or if a previous
injury was misdiagnosed or overlooked.
It is Never Too Late
While seeking treatment early is
the best course, good rehabilitation offers benefits at
any time. “It is almost always possible to benefit if
only through understanding the implications of one’s
deficits and learning some strategies and techniques to
compensate for them.”
The TBI Disabled Physician Returning to Practice
Because Dr. Osborn returned to
her hospital duties¾teaching
medical residents and interns and seeing patients¾she
knows it is possible for a brain-injured physician to
reenter the system unchallenged.
“If a doctor shows up for work,
the assumption is that the doctor is fit to work.”
She denies this is an example of
‘good ol’ boys’ sticking together. “It’s more
a matter of doctors being taken at their own word.
Sometimes we forget that having expert knowledge
doesn’t mean you can treat yourself. Thus the axiom,
‘an attorney who represents himself has a fool for a
lawyer.’
What does Dr. Osborn recommend?
“Every hospital should have a
written code,” she says, “dictating the conditions
under which a doctor with a TBI may return to work. This
should include nothing less that a full
neuropsychological examination.”
Such a code would have benefited
her. But that is another story and it is already told in
her book.
¾Jeanne Findlater
An
excerpt from: Over My Head
Please
Don't Tell Me You Know What It's Like
I
understand their motivation. People are being nice.
They want to reassure me I am normal, that my problems
are not different from theirs. It is a standard way
to let me know they feel good about me.
Our
conversation has few variations. They say about themselves,
"My memory is worthless. I don't know where I'm going
half the time. You think you're bad, I'm worse."
Or,
"Thank God, they don't give me those cognitive tests.
I'd never pass," " You're lucky you can blame everything
on a head injury. You forget that most of us have a
poor memory." "Just wait till you get to be 40 (60,
80) like me: You'll know what bad really is."
It
is inane chatter. It occurs while I am running as fast
as I can to stay in place, working to keep alert and
energized, to follow their conversation, to consciously
direct my mind using every strategy I possess just to
do something which for them is automatic.
After
12 years of university education, I labor to read a
short story, must ask my high-school-trained assistant
for directions to my job, and use an alarm every three
minutes to drive to the correct destination.
No,
they do not know what it is like. People's abilities
and inner resources vary widely in degree and kind.
That is not the same as being stripped of the abilities
one had and valued. Their occasional moments of absent-mindedness
and quirks of intellect have not robbed them of intellectual
exchanges, separated them from a beloved profession,
or made them unrecognizable to themselves.
Without
intention, they discount my struggle to compensate for
my losses and minimize the small victories in my day.
Surely, it would be outrageous to say to a person with
artificial legs that walking is a challenge for us all.
I try to take these insensitive comments in the well-intentioned
spirit in which they are given, but how I wish others
would try less hard to show me an empathy they do not
possess.
How
much better it is when people act naturally with me.
Often, I benefit from their assistance. It feels good
to laugh with them when my mistakes are funny and to
sense their empathy when they're not.
So,
laugh with me, cry with me, but please don't tell me
you know how I feel or you know what it's like because
"it's the same" for you.
How
can it be? You have never lived in my head.
from
my notebook, June 16, 1990
- TBI
Terminology:
Executive
Function: The ability to organize thoughts and work,
to create plans and successfully execute them, to
manage the administrative functions of one's life.
Individuals with impaired executive function may
appear to live moment to moment, fail to monitor
their activities or social interactions to make
sure they are carried out (or even initiated). With
diminished ability to create strategies, to handle
more than one task at a time, to be effective, reliable,
and productive, the simplest job may be too challenging.
(See OMH, pp 161-162, 163-165, 205-206 for examples.)
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